“I explained that the difference in being sick and being healthy is having to make choices or to consciously think about things when the rest of the world doesn’t have to. The healthy have the luxury of a life without choices, a gift most people take for granted.
Most people start the day with unlimited amount of possibilities, and energy to do whatever they desire, especially young people. For the most part, they do not need to worry about the effects of their actions. So for my explanation, I used spoons to convey this point. I wanted something for her to actually hold, for me to then take away, since most people who get sick feel a “loss” of a life they once knew. If I was in control of taking away the spoons, then she would know what it feels like to have someone or something else, in this case Lupus, being in control.”
“The Spoon Theory” describes what it is like to live each day making choices on what you can and can’t do with your day that the “normal” people just don’t think another thing about. Some days I have to make choices about ‘Do I brush my hair or not’ or a few times it has even been as base and elemental as, ‘what will it cost me in pain if I wipe my bum’.
I have had those days and there isn’t any joy there but you just prioritise on the things you have to do and other things get left by the wayside, family, chores, studies. Doesn’t matter. If they’re going to bring you more hurt then you drop them hoping that next day you might actually be able to get things done, that you will “have more spoons”.